Ehlers Danlos Pain & Symptom Logbook: Daily Record of Triggers, Activities, Medications, Supplements, Meals, Hydration, Physiotherapy & Medical ... - establish patterns and manage hEDS, EDS

Triggers, Pain and Symptoms

Triggers - options include heat, trauma, dehydration, salt, stretching, prolonged standing/sitting, lack of compression and more

Pain description

Symptoms - options include bruising, fatigue, bladder/bowel, heart rate, temperature issues, and more

Daily Assessments, BP, Heartrate

Daily Assessments - Circle applicable arrow to indicate 'Increased, Same, Decreased' for Pain, Stress, Fatigue, Energy, Activity, Mental Clarity, Activity Level, General Mood, Sleep Quality

Blood pressure - space allocated to enter BP and time (2x)

Heart rate - space allocated to enter pulse and time (2x)

Sleep - enter hours

Gastrointestinal issues - easy to circle up, down, steady for reflux, bloating, diarrhea, constipation, nausea

Exercise, Activities, Meals & Snacks

Exercise - check box for Recommended Exercises. List exercises along with time and how felt.

Activities - select from prelisted options (exercise, self-care, socializing, hobbies, employment, house/yard work, childcare, commute) and enter time. Check box to indicate if pacing was good.

Notes - insights, comments, questions, additional information

Meals & Snacks - list and check applicable box to indicate if meal contained salt, meat, dairy, gluten, sugar, fats

Medications

Symptom Note - for symptom details.

Medications - check box to indicate 'Usual Daily Medications' and/or 'Usual Daily Supplements'.

List additional medications with reason, time, dose and whether it helped.

Example of completed sections

Daily Assessment - note that pain and fatigue are increased while energy, activity and general mood are all decreased. There is no change for stress, mental clarity or sleep quality.

Vertigo is up, bloating is down, vision and anxiety are the same, and running a temperature.

Personal Information & Healthcare Team

Introductory page has space for personal info including emergency contact, allergies, medical alerts and health conditions.

Enter name, address, phone # for physician, specialists, pharmacy as well as insurance information.

Medications and Changes

Page for current medications / supplements along with reason and refill due date.

Page for CHANGES to medications and supplements with reason for the change, new dose, and date effective.

Upcoming Appointments and Tests/Results

Upcoming medical appointments - with whom? for what reason, and date

Tests, date performed, and the results.

Additional Logs

Blood Pressure Log

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